I guess I will start out with the bad news first. We are 80% to 90% sure Little John will be having another surgery soon. He has hip dysplysia. Your hip bone is at a 30 degree angle but Johns is at a 60 degree angle. It makes his left leg shorter than the right leg. We go to Indy(two hours away) on July 5 to see the surgeon. He will also have his surgery there. I know its good to have his hip fixed but this means he will be in a FULL body cast(legs and upper body) for 6 to 8 weeks. The surgeon will have to brake his bone and put it back together and put a pin in. Poor baby!! He goes through sooo much. Its a never ending thing for him.
He also had a MRI done to check is brain damage out and a eeg done. He has been having tremors that last about a second. Some times he will do it a couple of times a week and then he will go weeks at a time not doing it at all. The eeg was a nightmare they glued 27 wires on his head and he HATED every single minute of it. It was very upsetting to see him go through this. The MRI was a breeze. I got the results back yesterday. Hes not having seizures which is great news. His brain damage is still the same. He still has Mod. brain damage. The tremors are from that. His nerves in his brain aren't connecting. His doctor says that he might grow out of this or when he gets older he will feel it coming on and be able to stop them. When he has one it basically looks like a cold chill. So its not real bad.
OK some GOOD news. John is doing great things. He can sign 6 signs now. He knows "more, all done, milk, eat, fish and open." He can say " dada, mama, done, bud (for buddy the dog) Daven, baba, bubble, bye-bye, ball, baby and yum yum." If you ask him to go and get a certain thing like his elmo he will. He does new things all the time. Well guys I have to go John has therapy in 45 minutes so I will update later and keep everyone updated. Love and hugs to all.
Tuesday, June 19, 2007
GOOD NEWS BAD NEWS
Monday, June 18, 2007
Wednesday, May 02, 2007
HOW PREEMIE MOMS ARE CHOSEN
~*~How Preemie Moms Are Chosen~*~(Erma Bombeck)Did you ever wonder how the mothers of premature babies are chosen?Somehow, I visualize God hovering over Earth, selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to take notes in a giant ledger."Armstrong, Beth, son. Patron Saint, Matthew.Forrest, Marjorie, daughter. Patron Saint, Celia.Rutledge, Carrie, twins. Patron Saint...give her Gerard. He's used to profanity."Finally, he passes a name to an angel and smiles."Give her a preemie." The angel is curious. "Why this one, God?She's so happy.""Exactly," smiles God."Could I give a premature baby a mother who knows no laughter? That would be cruel.""But does she have the patience?" asks the angel."I don't want her to have too much patience, or she'll drown in a sea of self-pity and despair.Once the shock and resentment wear off, she'll handle it.I watched her today. She has that sense of self and independence so rare and so necessary in a mother.You see, the child I'm going to give her has a world of its own.She has to make it live in her world, and that's not going to be easy.""But Lord, I don't think she even believes in you."God smiles. "No matter, I can fix that. This one is perfect She has just the right amount of selfishness."The angel gasps, "Selfishness?! Is that a virtue?"God nods. "If she can't separate herself from the child occasionally, she will never survive.Yes, here is a woman whom I will bless with a child less than perfect.She doesn't know it yet, but she is to be envied.She will never take for granted a spoken word.She will never consider a step ordinary.When her child says momma for the first time,she will be witness to a miracle and know it.I will permit her to see clearly the things I see--ignorance, cruelty, prejudice--and allow her to rise above them.She will never be alone.I will be at her side every minute of every day of her lifebecause she is doing my work as surely as she is here by my side.""And what about her Patron Saint?" asks the angel, his pen poised in the air.God smiles. "A mirror will suffice."
Tuesday, April 03, 2007
OUR BABY BOY IS WALKING!!!
John is walking about 80% to 90% of the time now!!! Its such a beautiful thing to see. Me and his daddy are so proud of him. He's been doing great since my last post. He's been well and has gained back his weight plus some. He gained enough weight that we got to turn his carseat around so he can face forward now. Its nice to be able to give good reports about buggy.
I added a video of john walking but he is a lot faster now. I will take a couple more videos this week and put them on the website to share with friends and family. As you can also see by the pics at the end of this post John got his haircut! He looks like a big kid now!! I hope you enjoy the video and the pics!! Love to all!!!
