UPDATES

Sorry it has been a long time since I have updated the website. The week of Christmas I had to take little John to appointments very day. Then for Christmas we took him to his aunt Jennys and to my moms house. This week I took little John to the doctors and he had gained 14 ounces in 6 days. It was all fluid. He had fluid in his lungs and in his skin tissue. So his doctor upped his meds for the fluid and we go back on the 3rd to see if the fluid is gone. I can tell that its working because he's breathing a bit better. Also the same day his doctor sent us to the hospital because he thought that his hernia surgery came apart and ruptured. So he had a ultrasound done and there was alot of fluid in his scrotum. My poor baby!!! It looks like it really hurt and I'm sure it does. They also done some blood work while we where at the hospital. This breaks my heart that he STILL has to go though these painful things. I guess that in my mind I thought that once he came home that the pain would stop and we could protect him from going through these things. Today was another hard day because he had his eyes checked for his R.O.P. and that's getting better but he still has to go back in three weeks. Its still not gone but it is getting better. The bad news is in his right eye he has cataracts. Me and John where wondering what the white spot was in the middle of his pupil and now we know. So on his next eye appointment he will be referred to another eye doctor that deals with infants eyes. His eye doctor that he goes to now only deals with the retinas and retinal surgeries. So he will have another eye doctor and chances are another eye surgery. I pray that someday soon that he wont have to go though all this and that he wont have so many doctors appointments.

On a up note we had a good Christmas and Daven got alot of great stuff. He loved the Jersery that grandma Trina sent him from England. Little John got some really cute clothes. Little Johns nurse from the NICU sent him two very cute outfits. Little John thanks you Aunt Diane!!! Me and John are hoping that 2006 will be a better year for us. Little John was the best thing that happened to us. I wouldn't give him up for anything. I never thought it was possible to love someone so much that it hurts.

Well I will write more later and I will try to update the site more often. I hope everybody has a great new years. And may the new year bring you happiness and good health. Love and Hugs!!

PICTURES TAKEN TODAY

Aunt jenny came by today and took some pictures for us!!!

DAVEN AND LIL JOHN

MY THREE GUYS AND ONE WITH BUDDY!!!!!

ONE WITH MOMMY AND ONE WITH DADDY

ALL OF US!!!

PICTURES OF LIL JOHNS ROOM

HERES A PICTURE OF MY BABY SHOWER CAKE

A FEW PICTURES OF MY DAD HOLDING LIL JOHN BEFORE WE LEFT THE HOSPITAL

HERES A COUPLE OF PICTURES OF A PICTURE MY MOM MADE FOR LIL JOHN

THERAPY EVALUATIONS

Little John had his first evaluation done on Wednesday. There was a speech and physical therapist that came out to the house to see how he was coming along. They both said that he was where he was supposed to be in some areas and in other areas he was ahead. YEA!!!! I have been worried about this for awhile so it was nice to hear that( so far)things are moving along good. They will still be coming to the house once a month for now to make sure he's where he's supposed to be.

He has been smiling at us and has pretty good head control. He can hold his head up and look around when he's on his stomach. I've been working with him on some things myself. They also gave us some ideas to do with him, like getting black and white pictures. Also things like a mirror, rattlers that go on his wrists, toys that light up and other thing that I have been doing anyways. I get on the computer and look for things I can do to help our little guy along.

Next week is a very busy week for me and little john. Monday I take him to go get his RSV shot, Tuesday we go see Dr. Smith about his hernia surgery(follow-up), Wednesday first steps, Thursday his regular doctor and Friday there's nothing yet.(shhh, maybe I'm speaking to early lol)

Have I mentioned I cant wait until spring!!! I have been out of the house two times to go to the store and grab a bite to eat. Except to take little man to the doctors. But it is all worth it. I'm hoping though that the winter will go by quick. That way there is a smaller chance that little John will get sick and I can take him out in the real world.

I'm hoping to get some pics on here this weekend. Jennys coming over and bringing her digital camera so I plan on taking some pictures of little John and Daven. I Hope all is well with everybody and hope everybody will have a great Christmas. Love and hugs!!!

LITTLE JOHNS EYE APPT.

Little Johns eye appt. went good this week. The doctor said that his eyes are doing alot better then other babies eyes do. He doesn't have to go back for three weeks. YEAH!!! I really hate taking him out in this cold and snowy weather. I only have to take him out once next week and that's to go to his regular doctor. This is the only week this month that I only have to take him out once. Usually he has three appt a week. First steps will come on Wednesday to see if he needs therapy yet. I'm really glad that they come to the house to do therapy if he needs it now. It is really hard to take him out because only one person and carry everything. So you have to carry little John in his carseat then you have his apnea monitor and his oxygen you have to carry at the same time. He has another monitor that he uses at night, that's his pulse ox and it measures the oxygen in his blood. I'm lucky I don't have to lug that one around too. But its all worth it!! I love having him home!! I think me and John are spoiling him rotten already. I guess we feel that he definitely deserves it and more for all he was gone through.

His regular doctor said that he would be on the apnea monitor for at least four or five more months. Not sure how long he will need to be on the oxygen. Well I will update soon and I hope everything is going great with everyone. I have to go feed our baby boy. I hope everyone is staying warm!!

LITTLE JOHNS DOCTORS APPT.

Little Johns lungs looked better at his doctors appt. And he also weighed 6 pounds and 7 ounces. Boy he sure as came a long way from 1 pound and 9 ounces. I take him to the eye doctor in the morning at 8:30. I'm glad its tomorrow since we are going to get 4 to 6 inches of snow tomorrow night. Its hard to get little John around anyways but it would be even harder in alot of snow. He's been eating good and when he's laying on my chest he will lift his head up and look around.

Just in case I haven't told all of you that even though little John is 4 months old he is considered to be three weeks old. So when he turns 5 months his corrected age will be one month old and so on. It will be this way until he his two years old. He is doing things right know that a one month old would be doing and even some things a two month would do. Next week first steps is coming to the house to see if he needs any therapies yet. Well I will update you about his eye appt. Tomorrow. I hope all is well with everyone. We send out our love to everyone too.

LITTLE JOHN AT HOME

Me and John put the Christmas tree up last night. We are going to take some pics of us and little john in front of it. Tomorrow I take him back to the doctors. He wanted him to loss at least 5 oz by tomorrow. I think he has because all of his diapers have been pretty heavy. We will have a pretty busy week. Tomorrow first steps is coming in the morning then we go to the doctors in the afternoon. Tuesday oxygen will be delivered and on Thursday we go to the eye doctor.

We put little John in his swing today for the first time and he loves it!!! He's getting so big now. When he is laying on my chest in bed he raises his head up and looks around. He just started doing this in the last couple of days. I'm hoping to get a digital camera in a couple of months so I can get pics on here faster. I took some cute pics of Daven holding little John this weekend. I will put them on here win I get them back. I will update in a day or so about little Johns doctors appt. Make sure you scroll down and look at all the new pics!!!

SOME PICS OF LITTLE JOHN BEFORE WE LEFT THE NICU

PICTURES OF LITTLE JOHNS RIDE HOME

PROUD DADDY BRINGING HIS SON IN THE HOUSE FOR THE FIRST TIME!!!

LITTLE JOHN GETTING HIS FIRST BOTTLE AT HOME!!

LITTTLE JOHN DONT LIKE BATHS IF YOU CANT TELL:)

FIRST BATH AT HOME AND AS YOU CAN SEE ITS NOT HIS FAVORITE THING TO DO!! THE OTHER PIC IS HIS FIRST REAL BATH IN THE NICU.

little john update

hey world!!! john sr. here writing an update about little john, he had his first doctors appointment this week, weighed 6 pounds 9 oz, alot of fluid build up, had x-ray done and had some fluid in his lungs, so they gave him scrips for lasix and another diuretic. other than that his cute little butt is doing great, peeing like a champ and keeping the diaper companies in business(ha ha). on another subject got an update about kayne, little johns roomate at parkview, he has a staff infection from the shunt that they put in his brain for fluid drainage, he is in the peds unit for treatment, so please pray for his family and him during this trying time. he was only home less than a week. well until we talk again!!!